[This is an adaptation of the pamphlet sent to us, to be shared "... in whatever way ..." with our clients.]
National Institute of Mental Health
Laboratory of Clinical Science
The Staff of the Laboratory of Clinical Science invites individuals who have experienced obsessive-compulsive disorder, and their close relatives, to join in a genetic study.
Earlier Studies suggest that an inborn tendency to develop obsessive-compulsive disorder runs in some families. However, most relatives will never develop the illness.
In our family studies we look for the genes which may be causing some family members to be at risk for a psychological disorder. As we discover the nature of each gene, we will be able to develop better treatments.
We urge individuals suffering from obsessive-compulsive disorder, along with their family members, to participate in a scientific study which will help us better understand the causes of this disorder.
Obsessive-Compulsive Disorder is an anxiety disorder with either or both of the following:
Obsessions are often recognized as irrational and can drive the person to perform unrealistic, time-consuming, compulsive or ritualistic behaviors that interfere with daily life or relationships. This can cause a great deal of suffering for the one affected and for his or her family.
Many persons who sufer from obsessive-compulsive disorder, or who have a close relative with the disorder, have already brought their families into the study. The reason most often given is, "If I can help prevent this from happening to anyone else, I'll do anything." These families share our hope that finding genetic markers and vulnerability genes for this disorder will help medical researchers understand more about its physical basis. As a result, we will be able to develop more effective medications.
You are an essential player in the research. Without the help of people like you and your family, no study of inherited traits can be done and little progress will be made. We depend on your participation.
Usually someone who suffers from the disorder, or a close relative, calls or writes us. We do an initial screening and inquire about family members who have experienced obsessive-compulsive symptoms. We ask permission to write a letter to relatives, explaining the program and inviting participation. Those who accept send back a form noting the best time for us to call.
A confidential interview and a sample of blood
Scheduling is done to best suit the family member. While most of the work is done by telephone, in some instances we will be able to come to the homes of participants. Weekend and evening appointments are available for those who need them. No travel is needed.
All of the information obtained by the Family/Genetic Study will remain completely confidential, even among family members. No information about participants is shared with employers, insurance companies, or any other government agencies.
When research papers are published, no names or other identifying information about individual participants will appear.
Please call John Gause at (301)496-3421 (collect). He and our staff will be glad to answer any of your questions.
If you prefer, fill out the information below and we will contact you directly.
[Print, fill out, and mail this form. It is not an internet-sendable form.]
Name:
Address:
City:
State:
ZIP code:
Telephone, including area code:
Best Time to Call:
Family Members who could be asked to participate, including age and relationship to myself.
[This is an adaptation of the pamphlet sent to us, to be shared "... in whatever way ..." with our clients.]